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Care approaches for people with longstanding eating disorders: a lived experience perspective on the need for recovery-fostering care

رویکردهای مراقبتی برای افراد با اختلالات خوردن مزمن: دیدگاه تجربه زیسته درباره ضرورت مراقبت‌های بازیابی‌محور

Alykhan Asaria

Journal of Eating Disorders 2026 Vol. 14(1)
https://doi.org/10.1186/s40337-026-01786-5

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چکیده

People with longstanding eating disorders (EDs) are often conceptualised as 'treatment-resistant' when they are not currently benefitting from established recovery-focused treatments. This may encourage a shift from recovery-focused treatments to care approaches that for many individuals do not foster recovery. As a result, the present article offers an explicitly hope-holding and recovery-fostering care (RFC) approach that neither demands recovery nor abandons the possibility of recovery, whatever recovery may mean to the individual being cared for. RFC is guided by the following principles, which were developed in response to limitations identified in current care approaches for people with longstanding EDs: [1] Holding hope for meaningful recovery and enabling opportunities for it; [2] Building therapeutic alliances; [3] Formulation-based and epistemically just care; [4] Unconditional safeguarding; and [5] Supporting caregivers. RFC is not a scientific model with the level of specification often demanded by academic frameworks. Rather, it is a creative, flexible, and person-led approach to care that prioritises people with lived experience over strict adherence to manuals, and values humanity-based care alongside evidence-based care.

چکیده به فارسی

افراد مبتلا به اختلالات خوردن (EDs) مزمن اغلب زمانی که از درمان‌های مبتنی بر بهبودی مرسوم بهره‌مند نمی‌شوند، به عنوان «مقاوم به درمان» مفهوم‌سازی می‌شوند. این امر ممکن است موجب تغییر رویکرد از درمان‌های بازیابی‌محور به رویکردهای مراقبتی شود که برای بسیاری از افراد، بهبودی را تقویت نمی‌کنند. در نتیجه، مقاله حاضر رویکردی صریحاً امیدمحور و بازیابی‌پرور (RFC) ارائه می‌دهد که نه بهبودی را مطالبه می‌کند و نه امکان بهبودی را ـ صرف‌نظر از معنایی که بهبودی برای فرد تحت مراقبت دارد ـ کنار می‌گذارد. RFC بر اساس اصول زیر هدایت می‌شود که در پاسخ به محدودیت‌های شناسایی‌شده در رویکردهای مراقبتی کنونی برای افراد با EDs مزمن توسعه یافته‌اند: [۱] حفظ امید به بهبودی معنادار و فراهم‌سازی فرصت‌هایی برای آن؛ [۲] ایجاد اتحاد درمانی؛ [۳] مراقبت مبتنی بر فرمول‌بندی و عدالت معرفتی؛ [۴] حمایت بی‌قید و شرط؛ و [۵] حمایت از مراقبان. RFC یک مدل علمی با سطح مشخص‌سازی مورد انتظار در چارچوب‌های دانشگاهی نیست، بلکه رویکردی خلاقانه، انعطاف‌پذیر و فردمحور به مراقبت است که تجربه زیسته افراد را بر پایبندی سخت‌گیرانه به دستورالعمل‌ها مقدم می‌داند و مراقبت مبتنی بر انسانیت را در کنار مراقبت مبتنی بر شواهد ارزشمند می‌شمارد.

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موضوع‌ها و کلیدواژه‌ها

امیددرمانEating disordersLived experiencecare approachlong-term recoverypatient perspectives

ارجاع

Asaria, A. (2026). Care approaches for people with longstanding eating disorders: a lived experience perspective on the need for recovery-fostering care. Journal of Eating Disorders, 14(1). https://doi.org/10.1186/s40337-026-01786-5

(Asaria, 2026)

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قوانین پرسش و گفتگو
  1. با احترام و بدون توهین، تحقیر، برچسب‌زنی یا حمله‌ی شخصی با دیگران گفتگو کنید.
  2. از نوشتن هرگونه اطلاعات هویتی یا قابل‌شناسایی مراجعان، بیماران یا اشخاص ثالث، از جمله نام، شماره‌ی تماس، تصویر، نشانی، محل کار یا جزئیات منحصربه‌فرد پرونده خودداری کنید.
  3. اگر درباره‌ی یک تجربه‌ی بالینی سؤال می‌کنید، اطلاعات را تا حد ممکن بی‌نام و کلی بیان کنید تا امکان شناسایی فرد وجود نداشته باشد.
  4. این بخش برای یادگیری و گفت‌وگوی علمی است و جایگزین ارزیابی، تشخیص، مشاوره یا روان‌درمانی شخصی نیست.
  5. در شرایط بحران یا خطر آسیب به خود یا دیگران، به این بخش اتکا نکنید و برای دریافت کمک فوری با اورژانس اجتماعی ۱۲۳ یا صدای مشاور بهزیستی ۱۴۸۰ تماس بگیرید.
  6. انتشار تبلیغات، معرفی خدمات شخصی، شماره‌ی تلفن، شناسه‌ی شبکه‌های اجتماعی، پیوند تبلیغاتی یا درخواست جذب مراجع در این بخش مجاز نیست.
  7. در بیان ادعاهای علمی، به‌ویژه درباره‌ی اثربخشی درمان‌ها، تشخیص یا یافته‌های پژوهشی، تا حد امکان نام منبع معتبر، مقاله یا راهنمای علمی را ذکر کنید.
  8. از ارائه‌ی تشخیص قطعی، تجویز درمان یا دارو و توصیه‌های بالینی شخصی به سایر کاربران خودداری کنید.
  9. پاسخ‌هایی که کارشناسان فکر بنیان می‌دهند با برچسب «پاسخ فکر بنیان» یا «کارشناس فکر بنیان» نمایش داده می‌شوند و سایر نوشته‌ها بیانگر نظر کاربران هستند.
  10. گزارش نوشته‌ی نامناسب: اگر نوشته‌ای حاوی نقض محرمانگی، محتوای آسیب‌زا، توهین، تبلیغ یا تخلف از این قوانین است، گزینه‌ی «گزارش» را انتخاب کنید تا تیم سایت بررسی کند.

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