Informal carers’ experiences of mental health services regarding supporting those they care for and getting support for their own wellbeing: A systematic umbrella review of qualitative evidence
تجارب مراقبان غیررسمی از خدمات سلامت روان در زمینه حمایت از افراد تحت مراقبت و دریافت حمایت برای بهزیستی خود: یک مرور چتری نظاممند از شواهد کیفی
Informal carers play a vital role in supporting individuals with mental health difficulties. To provide an overarching synthesis of available evidence, this umbrella review aimed to synthesise qualitative review evidence on informal carers’ (including family members, friends, or other unpaid supporters) experiences of mental health services regarding supporting the individuals with mental health difficulties they care for and seeking support for their own wellbeing. Following the Joanna Briggs Institute (JBI) methodology, a meta-aggregative umbrella review was conducted. Five databases were searched up to 9th May 2025: CINAHL, MEDLINE, PsycInfo, the Cochrane Library, and Epistemonikos. The quality of primary systematic reviews was assessed using a framework adapted from the work of SmithBattle and colleagues. Findings were extracted from eligible reviews and aggregated into categories, from which higher-order synthesised findings were developed. Twelve eligible qualitative reviews were identified covering a wide range of mental health service contexts. Six synthesised findings were identified: (1) emotional complexity in the caregiving journey; (2) recognition and coping with their loved ones’ mental health difficulties; (3) multiple barriers to accessing mental health support; (4) persistent responsibilities and roles in supporting service users; (5) complex experiences of engaging with services; and (6) relational strain during the caregiving process. While some carers reported positive experiences, most described exclusion, emotional distress, and structural barriers to support. This review highlights the urgent need for mental health services to recognise, involve, and support informal carers.
چکیده به فارسی
مراقبان غیررسمی نقش حیاتی در حمایت از افراد دارای مشکلات سلامت روان ایفا میکنند. به منظور ارائه یک سنتز جامع از شواهد موجود، این مرور چتری با هدف سنتز شواهد مرورهای کیفی درباره تجارب مراقبان غیررسمی (از جمله اعضای خانواده، دوستان یا سایر حامیان بدون دستمزد) از خدمات سلامت روان در زمینه حمایت از افراد دارای مشکلات سلامت روان تحت مراقبت خود و جستجوی حمایت برای بهزیستی خود انجام شد. با پیروی از روششناسی Joanna Briggs Institute (JBI)، یک مرور چتری مبتنی بر تجمیع دادهها انجام گرفت. پنج پایگاه داده تا تاریخ ۹ مه ۲۰۲۵ جستجو شدند: CINAHL، MEDLINE، PsycInfo، Cochrane Library و Epistemonikos. کیفیت مرورهای نظاممند اولیه با استفاده از چارچوبی اقتباسشده از کار SmithBattle و همکاران ارزیابی شد. یافتهها از مرورهای واجد شرایط استخراج و در دستههایی تجمیع شدند که بر اساس آنها یافتههای سنتز شده سطح بالاتر توسعه یافتند. دوازده مرور کیفی واجد شرایط شناسایی شد که طیف وسیعی از زمینههای خدمات سلامت روان را پوشش میدادند. شش یافته سنتز شده شناسایی شد: (۱) پیچیدگی عاطفی در مسیر مراقبت؛ (۲) شناسایی و مقابله با مشکلات سلامت روان عزیزان؛ (۳) موانع متعدد در دسترسی به حمایت سلامت روان؛ (۴) مسئولیتها و نقشهای مداوم در حمایت از استفادهکنندگان خدمات؛ (۵) تجارب پیچیده در تعامل با خدمات؛ و (۶) فشارهای رابطهای در فرآیند مراقبت. اگرچه برخی مراقبان تجارب مثبتی گزارش کردند، اکثر آنها به طردشدگی، پریشانی عاطفی و موانع ساختاری در دریافت حمایت اشاره داشتند. این مرور بر ضرورت فوری شناسایی، مشارکت و حمایت از مراقبان غیررسمی توسط خدمات سلامت روان تأکید میکند.
ترجمهی خودکار برای آشنایی سریع؛ برای نقل و ارجاع، متن اصلی ملاک است.
Liu, X., Barnett, P., Nyikavaranda, P., Burley, L., & Lloyd‐Evans, B. (2026). Informal carers’ experiences of mental health services regarding supporting those they care for and getting support for their own wellbeing: A systematic umbrella review of qualitative evidence. PLOS mental health., 3(10), e0000740. https://doi.org/10.1371/journal.pmen.0000740
با احترام و بدون توهین، تحقیر، برچسبزنی یا حملهی شخصی با دیگران گفتگو کنید.
از نوشتن هرگونه اطلاعات هویتی یا قابلشناسایی مراجعان، بیماران یا اشخاص ثالث، از جمله نام، شمارهی تماس، تصویر، نشانی، محل کار یا جزئیات منحصربهفرد پرونده خودداری کنید.
اگر دربارهی یک تجربهی بالینی سؤال میکنید، اطلاعات را تا حد ممکن بینام و کلی بیان کنید تا امکان شناسایی فرد وجود نداشته باشد.
این بخش برای یادگیری و گفتوگوی علمی است و جایگزین ارزیابی، تشخیص، مشاوره یا رواندرمانی شخصی نیست.
در شرایط بحران یا خطر آسیب به خود یا دیگران، به این بخش اتکا نکنید و برای دریافت کمک فوری با اورژانس اجتماعی ۱۲۳ یا صدای مشاور بهزیستی ۱۴۸۰ تماس بگیرید.
انتشار تبلیغات، معرفی خدمات شخصی، شمارهی تلفن، شناسهی شبکههای اجتماعی، پیوند تبلیغاتی یا درخواست جذب مراجع در این بخش مجاز نیست.
در بیان ادعاهای علمی، بهویژه دربارهی اثربخشی درمانها، تشخیص یا یافتههای پژوهشی، تا حد امکان نام منبع معتبر، مقاله یا راهنمای علمی را ذکر کنید.
از ارائهی تشخیص قطعی، تجویز درمان یا دارو و توصیههای بالینی شخصی به سایر کاربران خودداری کنید.
پاسخهایی که کارشناسان فکر بنیان میدهند با برچسب «پاسخ فکر بنیان» یا «کارشناس فکر بنیان» نمایش داده میشوند و سایر نوشتهها بیانگر نظر کاربران هستند.
گزارش نوشتهی نامناسب: اگر نوشتهای حاوی نقض محرمانگی، محتوای آسیبزا، توهین، تبلیغ یا تخلف از این قوانین است، گزینهی «گزارش» را انتخاب کنید تا تیم سایت بررسی کند.
Background: Awareness of youth-friendly sexual and reproductive health services (YFSRHS) is an important starting point for enabling young people to identify and seek appropriate sexual and reproductive health information and care. However, awareness of these services may vary across settings, including higher education institutions. Objective: To determine the level of awareness of YFSRHS among undergraduate students at Saint Augustine University of Tanzania (SAUT), Malimbe Campus. Methods: A quantitative descriptive cross-sectional study was conducted among undergraduate students at SAUT Malimbe Campus. Data were collected using a structured, self-administered questionnaire. Of 109 questionnaires distributed, 108 completed questionnaires were included in the analysis. Descriptive statistics were used to summarize students’ awareness and reported sources of information. Results: Of the 108 respondents, 96 (88.9%) reported having heard of YFSRHS, while 12 (11.1%) had not. Social media was the most frequently reported source of information (44.0%), followed by friends or peers (41.0%) and health facilities (36.0%). University programmes and posters or advertisements were reported less frequently. Conclusion: Most respondents had heard of YFSRHS, with social media and peer networks serving as prominent information channels. Strengthening accurate information through these channels, alongside university-based communication, may help address the awareness gap among students who remain unreached.
The purpose of this research is to analyze the economic self-management strategies used by students of the Faculty of Business Sciences of the Technical University of Machala during their academic training; Interest in this study arose from the need to understand how students face economic difficulties that arise in their training. A mixed approach was applied and a survey was used on a representative sample of 367 students, identifying the main source of income for a part of the student population, evidencing alternatives to sustain their expenses and reduce their economic dependence. The most used strategies were observed when they go through difficult situations and if the income is sufficient to cover their expenses, reflecting the existence of limitations and conditioning the way of organizing their resources and decision making. Likewise, it was identified that students usually perceive an impact. in their academic performance. The results allowed us to understand the economic dynamics experienced by university students and provide information for the design of institutional strategies that contribute to strengthening permanence, well-being and academic success.
Although physical activity enjoyment is associated with athletes’ psychological outcomes, the mechanisms underlying its relationship with mental well-being remain unclear. This study examined the mediating role of loneliness among athletes. A correlational survey design was employed. The participants consisted of 350 athletes selected through criterion sampling, including 178 females (Mage= 20.58 ± 1.99) and 172 males (Mage= 21.91 ± 4.88). Data were collected using the Physical Activity Enjoyment Scale, UCLA Loneliness Scale–Short Form, and Warwick-Edinburgh Mental Well-Being Scale. Pearson correlation analysis and PROCESS Macro Model 4 mediation analysis were conducted, and indirect effects were tested using 5,000 bootstrap samples. Physical activity enjoyment was positively associated with mental well-being (r= .586, p< .01) and negatively associated with loneliness (a= −.196, p< .01). Loneliness was negatively associated with mental well-being (b= −.447, p< .01). The mediation analysis revealed a significant indirect effect of physical activity enjoyment on mental well-being through loneliness (indirect effect= .088, 95% CI [.026, .147]). These findings indicate that enjoyment of physical activity contributes to athletes’ mental well-being and that loneliness partially explains this relationship. The results emphasize the importance of considering social connectedness and psychological experiences in understanding athletes’ well-being.
Transitioning out of professional sport can present challenges for athletes and their wider environments, frequently necessitating coordinated physical, psychological, and economic support. Although these concerns have been documented in elite cycling, the extent to which structured transition programmes exist within the sport remains insufficiently understood, particularly in Europe, the historical centre of professional cycling. We conducted a cross-sectional qualitative documentary analysis, distributing a standardised inquiry to all European Cycling Federations (ECFs; N = 51) between December 2024-March 2025. Federations were asked whether they had formal strategies, policies, or resources related to athlete retirement. Responses were categorised as “ECF-level literature or initiative”, “No ECF-level provision”, or “No response” and relevant materials were descriptively synthesised. Amongst the 21 federations that responded, the majority (n = 17; ≈81%) reported no ECF-level retirement initiatives. Common reasons included limited resources, low perceived demand, or reliance on national or international bodies (i.e., Olympic Committees or sport-specific unions). Four ECFs (~19%) described transition-related structures, though these varied considerably in scope, definition, and delivery. Despite well-documented needs, structured retirement support for professional cyclists remains uncommon across European national federations, and existing programmes appear heterogeneously applied. As cycling expands globally, effective transition planning becomes increasingly important for athlete wellbeing and the long-term sustainability of the sport. Holistic, international collaborations led by cycling’s major governance bodies could strengthen career-long support systems, reinforce the public image of cycling as a health-promoting discipline, and create responsible, athlete-centered ecosystems.
Background: Patients with chronic kidney disease undergoing hemodialysis frequently experience physical and psychological complaints that may affect their sleep quality. Uremic pruritus, restless legs syndrome, anxiety, and post-hemodialysis fatigue are potential factors that may disrupt sleep quality. Objective: This study aimed to identify the factors influencing the sleep quality of patients with chronic kidney disease undergoing hemodialysis at Bahteramas Regional General Hospital, Southeast Sulawesi Province. Methods: This study employed a quantitative analytical approach with a cross-sectional design. The sample consisted of 83 respondents. Data were collected using the Pittsburgh Sleep Quality Index (PSQI), 5-D Itch Scale, International Restless Legs Syndrome Rating Scale (IRLS), Hospital Anxiety and Depression Scale-Anxiety (HADS-A), and a post-hemodialysis fatigue assessment instrument. Data were analyzed using the Chi-square test and binary logistic regression. Results: Bivariate analysis showed that uremic pruritus (p = 0.046), restless legs syndrome (p = 0.015), anxiety (p = 0.029), and post-hemodialysis fatigue (p = 0.049) were statistically significant factors associated with sleep quality. Simultaneously, the four variables had a statistically significant effect on sleep quality (p = 0.007), with a Nagelkerke R Square value of 0.217. In the multivariable analysis, only anxiety showed a statistically significant independent effect (p = 0.019). Conclusion: Uremic pruritus, restless legs syndrome, anxiety, and post-hemodialysis fatigue were statistically associated with sleep quality in the bivariate analysis. The four variables were jointly significant in the multivariable model, whereas only anxiety remained statistically significant after adjustment for the other variables.